Monday, March 17, 2014
IT COSTS....HOW MUCH ?!?!?!?
As I am sure you all know, I have had some type of neurologic issue for the past 14 years. In that time I have seen 6 different neurologists who have come up with multiple different diagnoses...all of which have been found to be erroneous because of genetic test results or because of the progression of my symptoms. I recently decided to try my 7th...and FINAL...neurologist. If she can't figure out the problem, then I'm done! I will just live with it and pray for strength to deal on a daily basis.
Anyway, the blood tests that this doctor ran came back with an interpretation from the doctor at the lab that my slightly elevated result would be consistent with Myasthenia Gravis with corresponding clinical picture. I was thrilled. FINALLY! The clinical picture online sounded like my symptoms so I thought we had finally found a diagnosis...and subsequent treatment. However, when the new neurologist saw the results, she doesn't think I have MG because my elevated result isn't "high enough". Okay, another conflicting diagnosis. But she DOES think I may have some type of mitochondrial disorder. Since the treatment for mitochondrial disorders is fairly innocuous (high dose vitamins) and the testing is invasive (muscle biopsy), she suggested I begin the vitamins in the hopes they may help me. Sounds good to me! Fairly benign vitamins and no surgery!
Yesterday I went to a couple of stores to price out the vitamins. OMG! The highest Co Q-10 I could find at the drugstore/food store was 200 mg for $40.99/80 ct bottle. I need to take 1200 mg a day. Like I said....HIGH dose, lol. I found it at CVS for B1G1 and I had some CVS coupons. The L-Carnitine is $19.49 for (30) 500 mg. pills. I need to take 1000 mg a day. This was also B1G1 at CVS.
So, after B1G1 for each type of pill, $4.00 off applied to my CVS card because I swiped it when I entered the store, a CVS coupon for $3.00 off vitamin purchases, a $2 manufacturer coupon for one type of pill and a $1.00 manufacturer coupon for the other...I paid $50.48...and SAVED $70.72. AND THIS IS ONLY 13 days worth of pills of the Co Q-10 and 15 days of the L-Carnitine! SOOO......Approximately $121.00 every two weeks if I don't happen to have as many "money off" and "coupons" as I did this time!
Holy Moley! Guess I am going to have to tighten that frugal belt even more. BUT, IF IT HELPS IT IS WORTH EVERY SINGLE PENNY...and then some! Dear Hubby and I started looking for cheaper "bulk purchase" prices online, but we don't want to put out the money until we are sure she is going to be keeping me on it. Thankfully, I got one of my diabetes medicines free at ShopRite. Every Little Bit Helps!
ETA: DANG! I must have been REALLY upset when I was doing my calculations, lol. I only calculated the dosage out for ONE bottle of each medication (I got B1G1!). So I have enough for a MONTH. Not quite so bad when I say $121 a month for the pills. Whew!